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Development of the parental needs scale for rare diseases: a tool for measuring the supportive care needs of parents caring for a child with a rare disease
BACKGROUND: Children and families affected by rare diseases have received scant consideration from the medical, scientific, and political communities, with parents’ needs especially having received little attention. Affected parents often have limited access to information and support and appropriat...
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| Publicado no: | J Multidiscip Healthc |
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| Main Authors: | , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
Dove Medical Press
2016
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5024776/ https://ncbi.nlm.nih.gov/pubmed/27672327 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2147/JMDH.S113898 |
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