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What are the information needs of parents caring for a child with Glutaric aciduria type 1?
BACKGROUND: Newborn screening has enabled the early diagnosis of Glutaric aciduria type 1, with the possibility of improving neurological outcomes in affected children. Achieving those outcomes requires parents to effectively manage their child’s condition by adherence to a strict dietary regime and...
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| Publicado no: | BMC Pediatr |
|---|---|
| Main Authors: | , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
BioMed Central
2019
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6790240/ https://ncbi.nlm.nih.gov/pubmed/31607269 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12887-019-1742-x |
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