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Parental Experiences of Raising a Child With Medium Chain Acyl-CoA Dehydrogenase Deficiency
Newborn screening enabling early diagnosis of medium chain acyl-CoA dehydrogenase deficiency (MCADD) has dramatically improved health outcomes in children with MCADD. Achieving those outcomes depends on effective management by parents. Understanding parental management strategies and associated anxi...
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| Udgivet i: | Glob Qual Nurs Res |
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| Main Authors: | , , , |
| Format: | Artigo |
| Sprog: | Inglês |
| Udgivet: |
SAGE Publications
2017
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| Fag: | |
| Online adgang: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5419063/ https://ncbi.nlm.nih.gov/pubmed/28516128 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/2333393617707080 |
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