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Parental Experiences of Raising a Child With Medium Chain Acyl-CoA Dehydrogenase Deficiency

Newborn screening enabling early diagnosis of medium chain acyl-CoA dehydrogenase deficiency (MCADD) has dramatically improved health outcomes in children with MCADD. Achieving those outcomes depends on effective management by parents. Understanding parental management strategies and associated anxi...

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Bibliografiska uppgifter
I publikationen:Glob Qual Nurs Res
Huvudupphovsmän: Piercy, Hilary, Machaczek, Katarzyna, Ali, Parveen, Yap, Sufin
Materialtyp: Artigo
Språk:Inglês
Publicerad: SAGE Publications 2017
Ämnen:
Länkar:https://ncbi.nlm.nih.gov/pmc/articles/PMC5419063/
https://ncbi.nlm.nih.gov/pubmed/28516128
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/2333393617707080
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