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Parental Experiences of Raising a Child With Medium Chain Acyl-CoA Dehydrogenase Deficiency
Newborn screening enabling early diagnosis of medium chain acyl-CoA dehydrogenase deficiency (MCADD) has dramatically improved health outcomes in children with MCADD. Achieving those outcomes depends on effective management by parents. Understanding parental management strategies and associated anxi...
Αποθηκεύτηκε σε:
| Τόπος έκδοσης: | Glob Qual Nurs Res |
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| Κύριοι συγγραφείς: | , , , |
| Μορφή: | Artigo |
| Γλώσσα: | Inglês |
| Έκδοση: |
SAGE Publications
2017
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| Θέματα: | |
| Διαθέσιμο Online: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5419063/ https://ncbi.nlm.nih.gov/pubmed/28516128 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/2333393617707080 |
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