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Parental Experiences of Raising a Child With Medium Chain Acyl-CoA Dehydrogenase Deficiency
Newborn screening enabling early diagnosis of medium chain acyl-CoA dehydrogenase deficiency (MCADD) has dramatically improved health outcomes in children with MCADD. Achieving those outcomes depends on effective management by parents. Understanding parental management strategies and associated anxi...
में बचाया:
| में प्रकाशित: | Glob Qual Nurs Res |
|---|---|
| मुख्य लेखकों: | , , , |
| स्वरूप: | Artigo |
| भाषा: | Inglês |
| प्रकाशित: |
SAGE Publications
2017
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| विषय: | |
| ऑनलाइन पहुंच: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5419063/ https://ncbi.nlm.nih.gov/pubmed/28516128 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/2333393617707080 |
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