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Mucopolysaccharidosis (MPS) Physical Symptom Score: Development, Reliability, and Validity

Objectives: We quantified medical signs and symptoms to construct the Physical Symptom Score (PSS) for use in research to assess somatic disease burden in mucopolysaccharidoses (MPS) to track disease and monitor treatments. We examined scoring reliability, its concurrent validity with other measures...

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Detalhes bibliográficos
Publicado no:JIMD Rep
Main Authors: Ahmed, A., Rudser, K., Kunin-Batson, A., Delaney, K., Whitley, C., Shapiro, E.
Formato: Artigo
Idioma:Inglês
Publicado em: Springer Berlin Heidelberg 2015
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4864710/
https://ncbi.nlm.nih.gov/pubmed/26303610
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/8904_2015_485
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