Mucopolysaccharidosis (MPS) Physical Symptom Score: Development, Reliability, and Validity

Objectives: We quantified medical signs and symptoms to construct the Physical Symptom Score (PSS) for use in research to assess somatic disease burden in mucopolysaccharidoses (MPS) to track disease and monitor treatments. We examined scoring reliability, its concurrent validity with other measures...

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Publicat a:JIMD Rep
Autors principals: Ahmed, A., Rudser, K., Kunin-Batson, A., Delaney, K., Whitley, C., Shapiro, E.
Format: Artigo
Idioma:Inglês
Publicat: Springer Berlin Heidelberg 2015
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Article
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC4864710/
https://ncbi.nlm.nih.gov/pubmed/26303610
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/8904_2015_485
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