Mucopolysaccharidosis (MPS) Physical Symptom Score: Development, Reliability, and Validity

Objectives: We quantified medical signs and symptoms to construct the Physical Symptom Score (PSS) for use in research to assess somatic disease burden in mucopolysaccharidoses (MPS) to track disease and monitor treatments. We examined scoring reliability, its concurrent validity with other measures...

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Publicado en:JIMD Rep
Main Authors: Ahmed, A., Rudser, K., Kunin-Batson, A., Delaney, K., Whitley, C., Shapiro, E.
Formato: Artigo
Idioma:Inglês
Publicado: Springer Berlin Heidelberg 2015
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Article
Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC4864710/
https://ncbi.nlm.nih.gov/pubmed/26303610
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/8904_2015_485
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