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Towards data integration automation for the French rare disease registry

Building a medical registry upon an existing infrastructure and rooted practices is not an easy task. It is the case for the BNDMR project, the French rare disease registry, that aims to collect administrative and medical data of rare disease patients seen in different hospitals. To avoid duplicatin...

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Bibliografiske detaljer
Udgivet i:AMIA Annu Symp Proc
Main Authors: Maaroufi, Meriem, Choquet, Rémy, Landais, Paul, Jaulent, Marie-Christine
Format: Artigo
Sprog:Inglês
Udgivet: American Medical Informatics Association 2015
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC4765585/
https://ncbi.nlm.nih.gov/pubmed/26958224
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