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Federating patients identities: the case of rare diseases
BACKGROUND: Patient information in rare disease registries is generally collected from numerous data sources, necessitating the data to be federated. In addition, data for research purposes must be de-identified. Transforming nominative data into de-identified data is thus a key issue, while minimiz...
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| Publicado no: | Orphanet J Rare Dis |
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| Main Authors: | , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
BioMed Central
2018
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6233538/ https://ncbi.nlm.nih.gov/pubmed/30419918 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-018-0948-6 |
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