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Federating patients identities: the case of rare diseases
Abstract Background Patient information in rare disease registries is generally collected from numerous data sources, necessitating the data to be federated. In addition, data for research purposes must be de-identified. Transforming nominative data into de-identified data is thus a key issue, while...
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| Главные авторы: | , , , , |
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| Формат: | Artigo |
| Язык: | Inglês |
| Опубликовано: |
BMC
2018-11-01
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| Серии: | Orphanet Journal of Rare Diseases |
| Предметы: | |
| Online-ссылка: | http://link.springer.com/article/10.1186/s13023-018-0948-6 |
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