Developing methodology for the creation of clinical practice guidelines for rare diseases: A report from RARE-Bestpractices

Rare diseases are a global public health priority; they can cause significant morbidity and mortality, can gravely affect quality of life, and can confer a social and economic burden on families and communities. These conditions are, by their nature, encountered very infrequently by clinicians. Thus...

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Vydáno v:Rare Dis
Hlavní autoři: Pai, Menaka, Iorio, Alfonso, Meerpohl, Joerg, Taruscio, Domenica, Laricchiuta, Paola, Mincarone, Pierpaolo, Morciano, Cristina, Leo, Carlo Giacomo, Sabina, Saverio, Akl, Elie, Treweek, Shaun, Djulbegovic, Benjamin, Schunemann, Holger
Médium: Artigo
Jazyk:Inglês
Vydáno: Taylor & Francis 2015
Témata:
Meeting Report
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC4590012/
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/21675511.2015.1058463
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