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Developing methodology for the creation of clinical practice guidelines for rare diseases: A report from RARE-Bestpractices
Rare diseases are a global public health priority; they can cause significant morbidity and mortality, can gravely affect quality of life, and can confer a social and economic burden on families and communities. These conditions are, by their nature, encountered very infrequently by clinicians. Thus...
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Publicado no: | Rare Dis |
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Main Authors: | , , , , , , , , , , , , |
Formato: | Artigo |
Idioma: | Inglês |
Publicado em: |
Taylor & Francis
2015
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Assuntos: | |
Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4590012/ https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/21675511.2015.1058463 |
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