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How to routinely collect data on patient-reported outcome and experience measures in renal registries in Europe: an expert consensus meeting

Despite the potential for patient-reported outcome measures (PROMs) and experience measures (PREMs) to enhance understanding of patient experiences and outcomes they have not, to date, been widely incorporated into renal registry datasets. This report summarizes the main points learned from an ERA-E...

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Publicado en:Nephrol Dial Transplant
Main Authors: Breckenridge, Kate, Bekker, Hillary L., Gibbons, Elizabeth, van der Veer, Sabine N., Abbott, Denise, Briançon, Serge, Cullen, Ron, Garneata, Liliana, Jager, Kitty J., Lønning, Kjersti, Metcalfe, Wendy, Morton, Rachael L., Murtagh, Fliss E.M., Prutz, Karl, Robertson, Susan, Rychlik, Ivan, Schon, Steffan, Sharp, Linda, Speyer, Elodie, Tentori, Francesca, Caskey, Fergus J.
Formato: Artigo
Idioma:Inglês
Publicado: Oxford University Press 2015
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Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC4569391/
https://ncbi.nlm.nih.gov/pubmed/25982327
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1093/ndt/gfv209
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