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How to routinely collect data on patient-reported outcome and experience measures in renal registries in Europe: an expert consensus meeting

Despite the potential for patient-reported outcome measures (PROMs) and experience measures (PREMs) to enhance understanding of patient experiences and outcomes they have not, to date, been widely incorporated into renal registry datasets. This report summarizes the main points learned from an ERA-E...

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Udgivet i:Nephrol Dial Transplant
Main Authors: Breckenridge, Kate, Bekker, Hillary L., Gibbons, Elizabeth, van der Veer, Sabine N., Abbott, Denise, Briançon, Serge, Cullen, Ron, Garneata, Liliana, Jager, Kitty J., Lønning, Kjersti, Metcalfe, Wendy, Morton, Rachael L., Murtagh, Fliss E.M., Prutz, Karl, Robertson, Susan, Rychlik, Ivan, Schon, Steffan, Sharp, Linda, Speyer, Elodie, Tentori, Francesca, Caskey, Fergus J.
Format: Artigo
Sprog:Inglês
Udgivet: Oxford University Press 2015
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC4569391/
https://ncbi.nlm.nih.gov/pubmed/25982327
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1093/ndt/gfv209
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