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How to routinely collect data on patient-reported outcome and experience measures in renal registries in Europe: an expert consensus meeting

Despite the potential for patient-reported outcome measures (PROMs) and experience measures (PREMs) to enhance understanding of patient experiences and outcomes they have not, to date, been widely incorporated into renal registry datasets. This report summarizes the main points learned from an ERA-E...

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Pubblicato in:Nephrol Dial Transplant
Autori principali: Breckenridge, Kate, Bekker, Hillary L., Gibbons, Elizabeth, van der Veer, Sabine N., Abbott, Denise, Briançon, Serge, Cullen, Ron, Garneata, Liliana, Jager, Kitty J., Lønning, Kjersti, Metcalfe, Wendy, Morton, Rachael L., Murtagh, Fliss E.M., Prutz, Karl, Robertson, Susan, Rychlik, Ivan, Schon, Steffan, Sharp, Linda, Speyer, Elodie, Tentori, Francesca, Caskey, Fergus J.
Natura: Artigo
Lingua:Inglês
Pubblicazione: Oxford University Press 2015
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC4569391/
https://ncbi.nlm.nih.gov/pubmed/25982327
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1093/ndt/gfv209
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