The National Spina Bifida Patient Registry: Profile of a Large Cohort of Participants from the First 10 Clinics

OBJECTIVE: To use data from the US National Spina Bifida Patient Registry (NSBPR) to describe variations in Contexts of Care, Processes of Care, and Health Outcomes among individuals with spina bifida (SB) receiving care in 10 clinics. STUDY DESIGN: Reported here are baseline cross-sectional data re...

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Vydáno v:J Pediatr
Hlavní autoři: Sawin, Kathleen J., Liu, Tiebin, Ward, Elisabeth, Thibadeau, Judy, Schechter, Michael S., Soe, Minn M., Walker, William
Médium: Artigo
Jazyk:Inglês
Vydáno: 2014
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Article
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC4535790/
https://ncbi.nlm.nih.gov/pubmed/25444012
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.jpeds.2014.09.039
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