Testing the Feasibility of a National Spina Bifida Patient Registry

BACKGROUND: The purpose of this study was to describe the development and early implementation of a national spina bifida (SB) patient registry, the goal of which is to monitor the health status, clinical care, and outcomes of people with SB by collecting and analyzing patient data from comprehensiv...

Disgrifiad llawn

Wedi'i Gadw mewn:
Manylion Llyfryddiaeth
Cyhoeddwyd yn:Birth Defects Res A Clin Mol Teratol
Prif Awduron: Thibadeau, Judy K., Ward, Elisabeth A., Soe, Minn M., Liu, Tiebin, Swanson, Mark, Sawin, Kathleen J., Freeman, Kurt A., Castillo, Heidi, Rauen, Karen, Schechter, Michael S.
Fformat: Artigo
Iaith:Inglês
Cyhoeddwyd: 2012
Pynciau:
Article
Mynediad Ar-lein:https://ncbi.nlm.nih.gov/pmc/articles/PMC4470391/
https://ncbi.nlm.nih.gov/pubmed/23125114
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/bdra.23094
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