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Testing the Feasibility of a National Spina Bifida Patient Registry

BACKGROUND: The purpose of this study was to describe the development and early implementation of a national spina bifida (SB) patient registry, the goal of which is to monitor the health status, clinical care, and outcomes of people with SB by collecting and analyzing patient data from comprehensiv...

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Detalhes bibliográficos
Publicado no:Birth Defects Res A Clin Mol Teratol
Main Authors: Thibadeau, Judy K., Ward, Elisabeth A., Soe, Minn M., Liu, Tiebin, Swanson, Mark, Sawin, Kathleen J., Freeman, Kurt A., Castillo, Heidi, Rauen, Karen, Schechter, Michael S.
Formato: Artigo
Idioma:Inglês
Publicado em: 2012
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Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4470391/
https://ncbi.nlm.nih.gov/pubmed/23125114
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/bdra.23094
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