The National Spina Bifida Patient Registry: Profile of a Large Cohort of Participants from the First 10 Clinics

OBJECTIVE: To use data from the US National Spina Bifida Patient Registry (NSBPR) to describe variations in Contexts of Care, Processes of Care, and Health Outcomes among individuals with spina bifida (SB) receiving care in 10 clinics. STUDY DESIGN: Reported here are baseline cross-sectional data re...

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Detalhes bibliográficos
Publicado no:J Pediatr
Main Authors: Sawin, Kathleen J., Liu, Tiebin, Ward, Elisabeth, Thibadeau, Judy, Schechter, Michael S., Soe, Minn M., Walker, William
Formato: Artigo
Idioma:Inglês
Publicado em: 2014
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Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4535790/
https://ncbi.nlm.nih.gov/pubmed/25444012
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.jpeds.2014.09.039
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