A quality-of-life measure for adults with primary ciliary dyskinesia: QOL–PCD

Primary ciliary dyskinesia (PCD) is characterised by chronic suppurative lung disease, rhino-sinusitis, hearing impairment and sub-fertility. We have developed the first multidimensional measure to assess health-related quality of life (HRQoL) in adults with PCD (QOL–PCD). Following a literature rev...

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Vydáno v:Eur Respir J
Hlavní autoři: Lucas, Jane S., Behan, Laura, Dunn Galvin, Audrey, Alpern, Adrianne, Morris, Anjana M., Carroll, Mary P., Knowles, Michael R., Leigh, Margaret W., Quittner, Alexandra L.
Médium: Artigo
Jazyk:Inglês
Vydáno: European Respiratory Society 2015
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Original Articles
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC4522020/
https://ncbi.nlm.nih.gov/pubmed/25976687
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1183/09031936.00216214
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