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Parent Ratings of Ability to Consent for Clinical Trials in Fragile X Syndrome

Advances in understanding neurobiology and intellectual disabilities have led to clinical trials testing new medications. This study assessed parents’ perceptions of the ability of their son or daughter with fragile X syndrome (FXS), an inherited form of intellectual disability, to participate in th...

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Detalles Bibliográficos
Publicado en:J Empir Res Hum Res Ethics
Main Authors: Bailey, Donald B., Raspa, Melissa, Wheeler, Anne C., Edwards, Anne, Bishop, Ellen, Bann, Carla, Borasky, David, Appelbaum, Paul S.
Formato: Artigo
Idioma:Inglês
Publicado: 2014
Assuntos:
Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC4240639/
https://ncbi.nlm.nih.gov/pubmed/25422596
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/1556264614540591
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