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Parent Ratings of Ability to Consent for Clinical Trials in Fragile X Syndrome

Advances in understanding neurobiology and intellectual disabilities have led to clinical trials testing new medications. This study assessed parents’ perceptions of the ability of their son or daughter with fragile X syndrome (FXS), an inherited form of intellectual disability, to participate in th...

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Detalhes bibliográficos
Publicado no:J Empir Res Hum Res Ethics
Main Authors: Bailey, Donald B., Raspa, Melissa, Wheeler, Anne C., Edwards, Anne, Bishop, Ellen, Bann, Carla, Borasky, David, Appelbaum, Paul S.
Formato: Artigo
Idioma:Inglês
Publicado em: 2014
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4240639/
https://ncbi.nlm.nih.gov/pubmed/25422596
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/1556264614540591
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