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Parent Ratings of Ability to Consent for Clinical Trials in Fragile X Syndrome

Advances in understanding neurobiology and intellectual disabilities have led to clinical trials testing new medications. This study assessed parents’ perceptions of the ability of their son or daughter with fragile X syndrome (FXS), an inherited form of intellectual disability, to participate in th...

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Dades bibliogràfiques
Publicat a:J Empir Res Hum Res Ethics
Autors principals: Bailey, Donald B., Raspa, Melissa, Wheeler, Anne C., Edwards, Anne, Bishop, Ellen, Bann, Carla, Borasky, David, Appelbaum, Paul S.
Format: Artigo
Idioma:Inglês
Publicat: 2014
Matèries:
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC4240639/
https://ncbi.nlm.nih.gov/pubmed/25422596
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/1556264614540591
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