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Parent Ratings of Ability to Consent for Clinical Trials in Fragile X Syndrome

Advances in understanding neurobiology and intellectual disabilities have led to clinical trials testing new medications. This study assessed parents’ perceptions of the ability of their son or daughter with fragile X syndrome (FXS), an inherited form of intellectual disability, to participate in th...

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Bibliografiske detaljer
Udgivet i:J Empir Res Hum Res Ethics
Main Authors: Bailey, Donald B., Raspa, Melissa, Wheeler, Anne C., Edwards, Anne, Bishop, Ellen, Bann, Carla, Borasky, David, Appelbaum, Paul S.
Format: Artigo
Sprog:Inglês
Udgivet: 2014
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC4240639/
https://ncbi.nlm.nih.gov/pubmed/25422596
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1177/1556264614540591
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