Organizing national responses for rare blood disorders: the Italian experience with sickle cell disease in childhood

BACKGROUND: Sickle cell disease (SCD) is the most frequent hemoglobinopathy worldwide but remains a rare blood disorder in most western countries. Recommendations for standard of care have been produced in the United States, the United Kingdom and France, where this disease is relatively frequent be...

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Publicado en:Orphanet J Rare Dis
Autores principales: Colombatti, Raffaella, Perrotta, Silverio, Samperi, Piera, Casale, Maddalena, Masera, Nicoletta, Palazzi, Giovanni, Sainati, Laura, Russo, Giovanna
Formato: Artigo
Lenguaje:Inglês
Publicado: BioMed Central 2013
Materias:
Research
Acceso en línea:https://ncbi.nlm.nih.gov/pmc/articles/PMC4231397/
https://ncbi.nlm.nih.gov/pubmed/24139596
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1750-1172-8-169
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