Organizing national responses for rare blood disorders: the Italian experience with sickle cell disease in childhood

BACKGROUND: Sickle cell disease (SCD) is the most frequent hemoglobinopathy worldwide but remains a rare blood disorder in most western countries. Recommendations for standard of care have been produced in the United States, the United Kingdom and France, where this disease is relatively frequent be...

Täydet tiedot

Tallennettuna:
Bibliografiset tiedot
Julkaisussa:Orphanet J Rare Dis
Päätekijät: Colombatti, Raffaella, Perrotta, Silverio, Samperi, Piera, Casale, Maddalena, Masera, Nicoletta, Palazzi, Giovanni, Sainati, Laura, Russo, Giovanna
Aineistotyyppi: Artigo
Kieli:Inglês
Julkaistu: BioMed Central 2013
Aiheet:
Research
Linkit:https://ncbi.nlm.nih.gov/pmc/articles/PMC4231397/
https://ncbi.nlm.nih.gov/pubmed/24139596
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1750-1172-8-169
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