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Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients

BACKGROUND: Effectively educating families about the risks and benefits of genomic tests such as whole exome sequencing (WES) offers numerous challenges, including the complexity of test results and potential loss of privacy. Research on best practices for obtaining informed consent (IC) in a variet...

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書誌詳細
主要な著者: Scollon, Sarah, Bergstrom, Katie, Kerstein, Robin A, Wang, Tao, Hilsenbeck, Susan G, Ramamurthy, Uma, Gibbs, Richard A, Eng, Christine M, Chintagumpala, Murali M, Berg, Stacey L, McCullough, Laurence B, McGuire, Amy L, Plon, Sharon E, Parsons, D Williams
フォーマット: Artigo
言語:Inglês
出版事項: BioMed Central 2014
主題:
オンライン・アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC4195891/
https://ncbi.nlm.nih.gov/pubmed/25317207
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13073-014-0069-3
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