Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients

BACKGROUND: Effectively educating families about the risks and benefits of genomic tests such as whole exome sequencing (WES) offers numerous challenges, including the complexity of test results and potential loss of privacy. Research on best practices for obtaining informed consent (IC) in a variet...

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Detalhes bibliográficos
Main Authors: Scollon, Sarah, Bergstrom, Katie, Kerstein, Robin A, Wang, Tao, Hilsenbeck, Susan G, Ramamurthy, Uma, Gibbs, Richard A, Eng, Christine M, Chintagumpala, Murali M, Berg, Stacey L, McCullough, Laurence B, McGuire, Amy L, Plon, Sharon E, Parsons, D Williams
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2014
Assuntos:
Research
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC4195891/
https://ncbi.nlm.nih.gov/pubmed/25317207
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13073-014-0069-3
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