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The TREAT-NMD care and trial site registry: an online registry to facilitate clinical research for neuromuscular diseases
BACKGROUND: Rare diseases pose many research challenges specific to their scarcity. Advances in potential therapies have made it more important than ever to be able to adequately identify not only patients with particular genotypes (via patient registries) but also the medical professionals who prov...
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| Autores principales: | , , , , , , , , |
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| Formato: | Artigo |
| Lenguaje: | Inglês |
| Publicado: |
BioMed Central
2013
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| Materias: | |
| Acceso en línea: | https://ncbi.nlm.nih.gov/pmc/articles/PMC3819466/ https://ncbi.nlm.nih.gov/pubmed/24148153 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1750-1172-8-171 |
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