The TREAT-NMD care and trial site registry: an online registry to facilitate clinical research for neuromuscular diseases

BACKGROUND: Rare diseases pose many research challenges specific to their scarcity. Advances in potential therapies have made it more important than ever to be able to adequately identify not only patients with particular genotypes (via patient registries) but also the medical professionals who prov...

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Main Authors: Rodger, Sunil, Lochmüller, Hanns, Tassoni, Adrian, Gramsch, Kathrin, König, Kirsten, Bushby, Kate, Straub, Volker, Korinthenberg, Rudolf, Kirschner, Janbernd
Formato: Artigo
Idioma:Inglês
Publicado: BioMed Central 2013
Assuntos:
Research
Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC3819466/
https://ncbi.nlm.nih.gov/pubmed/24148153
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1750-1172-8-171
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