Φορτώνει......
De-duplicating patient records from three independent data sources reveals the incidence of rare neuromuscular disorders in Germany
BACKGROUND: Estimation of incidence in rare diseases is often challenging due to unspecific and incomplete coding and recording systems. Patient- and health care provider-driven data collections are held with different organizations behind firewalls to protect the privacy of patients. They tend to b...
Αποθηκεύτηκε σε:
| Τόπος έκδοσης: | Orphanet J Rare Dis |
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| Κύριοι συγγραφείς: | , , , , , , , , |
| Μορφή: | Artigo |
| Γλώσσα: | Inglês |
| Έκδοση: |
BioMed Central
2019
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| Θέματα: | |
| Διαθέσιμο Online: | https://ncbi.nlm.nih.gov/pmc/articles/PMC6591958/ https://ncbi.nlm.nih.gov/pubmed/31234869 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-019-1125-2 |
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