Managing Incidental Findings and Research Results in Genomic Research Involving Biobanks & Archived Datasets

Biobanks and archived datasets collecting samples and data have become crucial engines of genetic and genomic research. Unresolved, however, is what responsibilities biobanks should shoulder to manage incidental findings (IFs) and individual research results (IRRs) of potential health, reproductive,...

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Detalhes bibliográficos
Main Authors: Wolf, Susan M., Crock, Brittney N., Van Ness, Brian, Lawrenz, Frances, Kahn, Jeffrey P., Beskow, Laura M., Cho, Mildred K., Christman, Michael F., Green, Robert C., Hall, Ralph, Illes, Judy, Keane, Moira, Knoppers, Bartha M., Koenig, Barbara A., Kohane, Isaac S., LeRoy, Bonnie, Maschke, Karen J., McGeveran, William, Ossorio, Pilar, Parker, Lisa S., Petersen, Gloria M., Richardson, Henry S., Scott, Joan A., Terry, Sharon F., Wilfond, Benjamin S., Wolf, Wendy A.
Formato: Artigo
Idioma:Inglês
Publicado em: 2012
Assuntos:
Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3597341/
https://ncbi.nlm.nih.gov/pubmed/22436882
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2012.23
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