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Power to the people: a wiki-governance model for biobanks

Biobanks are adopting various modes of public engagement to close the agency gap between participants and biobank builders. We propose a wiki-governance model for biobanks that harnesses Web 2.0, and which gives citizens the ability to collaborate in biobank governance and policymaking.

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Detalhes bibliográficos
Main Authors: Dove, Edward S, Joly, Yann, Knoppers, Bartha M
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2012
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3446283/
https://ncbi.nlm.nih.gov/pubmed/22647613
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/gb-2012-13-5-158
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