Managing Incidental Findings and Research Results in Genomic Research Involving Biobanks & Archived Datasets

Biobanks and archived datasets collecting samples and data have become crucial engines of genetic and genomic research. Unresolved, however, is what responsibilities biobanks should shoulder to manage incidental findings (IFs) and individual research results (IRRs) of potential health, reproductive,...

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Hlavní autoři: Wolf, Susan M., Crock, Brittney N., Van Ness, Brian, Lawrenz, Frances, Kahn, Jeffrey P., Beskow, Laura M., Cho, Mildred K., Christman, Michael F., Green, Robert C., Hall, Ralph, Illes, Judy, Keane, Moira, Knoppers, Bartha M., Koenig, Barbara A., Kohane, Isaac S., LeRoy, Bonnie, Maschke, Karen J., McGeveran, William, Ossorio, Pilar, Parker, Lisa S., Petersen, Gloria M., Richardson, Henry S., Scott, Joan A., Terry, Sharon F., Wilfond, Benjamin S., Wolf, Wendy A.
Médium: Artigo
Jazyk:Inglês
Vydáno: 2012
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Article
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC3597341/
https://ncbi.nlm.nih.gov/pubmed/22436882
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2012.23
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