The BeWayAPDS project: Designing the best way to optimize management of activated PI3Kδ syndrome (APDS) in Spain from the perspective of key stakeholders
Background: Rare diseases represent a challenge for healthcare systems due to lack of awareness, complexity in management and the limited published evidence available. Activated phosphoinositide 3-kinase delta syndrome (APDS) involves different healthcare specialists from diagnosis to long-term foll...
محفوظ في:
| المؤلفون الرئيسيون: | , , , , , , , , , , , , , |
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| التنسيق: | Artigo |
| اللغة: | Inglês |
| منشور في: |
Elsevier
2025-01-01
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| سلاسل: | Rare |
| الموضوعات: | |
| الوصول للمادة أونلاين: | http://www.sciencedirect.com/science/article/pii/S2950008725000158 |
| الوسوم: |
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