The BeWayAPDS project: Designing the best way to optimize management of activated PI3Kδ syndrome (APDS) in Spain from the perspective of key stakeholders

Background: Rare diseases represent a challenge for healthcare systems due to lack of awareness, complexity in management and the limited published evidence available. Activated phosphoinositide 3-kinase delta syndrome (APDS) involves different healthcare specialists from diagnosis to long-term foll...

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Autors principals:	María Elena Seoane-Reula, Carmen Garrido-Colino, Inmaculada Mediavilla, Laia Alsina, Miguel García, Jose Luis Poveda, Carlos Mur, Sandra Flores, Carmen Alerany, María Ángeles Escobar Palazón, Carlos Jiménez, Macarena Sierra, Kirsten H. Herrmann, Alicia Gil
Format:	Artigo
Idioma:	Inglês
Publicat:	Elsevier 2025-01-01
Col·lecció:	Rare
Matèries:	Activated phosphoinositide 3-kinase delta syndrome APDS patient pathway
Accés en línia:	http://www.sciencedirect.com/science/article/pii/S2950008725000158
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