Burden of caregivers of patients with neuronopathic and non-neuronopathic Gaucher disease in Japan: A survey-based study

Background: Gaucher disease (GD), a rare lysosomal storage disorder, is associated with considerable patient and caregiver burden. We examined the applicability of existing caregiver questionnaires and assessed the level of burden in caregivers of patients with GD. Methods: This cross-sectional, non...

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Xehetasun bibliografikoak

Egile Nagusiak:	Yuta Koto, Aya Narita, Shinichi Noto, Masafumi Okada, Midori Ono, Terumi Baba, Rieko Sagara, Norio Sakai
Formatua:	Artigo
Hizkuntza:	Inglês
Argitaratua:	Elsevier 2023-09-01
Saila:	Molecular Genetics and Metabolism Reports
Gaiak:	Caregiver burden Gaucher disease Japan Caregiver Impact Questionnaire Neuronopathic Gaucher disease Zarit Caregiver Burden Interview
Sarrera elektronikoa:	http://www.sciencedirect.com/science/article/pii/S221442692300040X
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