Burden of caregivers of patients with neuronopathic and non-neuronopathic Gaucher disease in Japan: A survey-based study

Background: Gaucher disease (GD), a rare lysosomal storage disorder, is associated with considerable patient and caregiver burden. We examined the applicability of existing caregiver questionnaires and assessed the level of burden in caregivers of patients with GD. Methods: This cross-sectional, non...

Whakaahuatanga katoa

Ngā taipitopito rārangi puna kōrero

Ngā kaituhi matua:	Yuta Koto, Aya Narita, Shinichi Noto, Masafumi Okada, Midori Ono, Terumi Baba, Rieko Sagara, Norio Sakai
Hōputu:	Artigo
Reo:	Inglês
I whakaputaina:	Elsevier 2023-09-01
Rangatū:	Molecular Genetics and Metabolism Reports
Ngā marau:	Caregiver burden Gaucher disease Japan Caregiver Impact Questionnaire Neuronopathic Gaucher disease Zarit Caregiver Burden Interview
Urunga tuihono:	http://www.sciencedirect.com/science/article/pii/S221442692300040X
Ngā Tūtohu:	Tāpirihia he Tūtohu Kāore He Tūtohu, Me noho koe te mea tuatahi ki te tūtohu i tēnei pūkete!