Burden of caregivers of patients with neuronopathic and non-neuronopathic Gaucher disease in Japan: A survey-based study

Background: Gaucher disease (GD), a rare lysosomal storage disorder, is associated with considerable patient and caregiver burden. We examined the applicability of existing caregiver questionnaires and assessed the level of burden in caregivers of patients with GD. Methods: This cross-sectional, non...

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Номзүйн дэлгэрэнгүй

Үндсэн зохиолчид:	Yuta Koto, Aya Narita, Shinichi Noto, Masafumi Okada, Midori Ono, Terumi Baba, Rieko Sagara, Norio Sakai
Формат:	Artigo
Хэл сонгох:	Inglês
Хэвлэсэн:	Elsevier 2023-09-01
Цуврал:	Molecular Genetics and Metabolism Reports
Нөхцлүүд:	Caregiver burden Gaucher disease Japan Caregiver Impact Questionnaire Neuronopathic Gaucher disease Zarit Caregiver Burden Interview
Онлайн хандалт:	http://www.sciencedirect.com/science/article/pii/S221442692300040X
Шошгууд:	Шошго нэмэх Шошго байхгүй, Энэхүү баримтыг шошголох эхний хүн болох!