Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks

Por Keller, San D, Yang, Manshu, Treadwell, Marsha J, Werner, Ellen M, Hassell, Kathryn L
Publicado no Health Qual Life Outcomes (2014)

Quality of care in sickle cell disease: Cross-sectional study and development of a measure for adults reporting on ambulatory and emergency department care

Por Evensen, Christian T., Treadwell, Marsha J., Keller, San, Levine, Roger, Hassell, Kathryn L., Werner, Ellen M., Smith, Wally R.
Publicado no Medicine (Baltimore) (2016)

News from the NIH: Person-centered outcomes measurement: NIH-supported measurement systems to evaluate self-assessed health, functional performance, and symptomatic toxicity

Por Smith, Ashley Wilder, Mitchell, Sandra A., K. De Aguiar, Cheryl, Moy, Claudia, Riley, William T., Wagster, Molly V., M. Werner, Ellen
Publicado no Transl Behav Med (2015)

Standard measures for sickle cell disease research: the PhenX Toolkit sickle cell disease collections

Por Eckman, James R., Hassell, Kathryn L., Huggins, Wayne, Werner, Ellen M., Klings, Elizabeth S., Adams, Robert J., Panepinto, Julie A., Hamilton, Carol M.
Publicado no Blood Adv (2017)

Mortality of New York children with sickle cell disease identified through newborn screening

Por Wang, Ying, Liu, Gang, Caggana, Michele, Kennedy, Joseph, Zimmerman, Regina, Oyeku, Suzette O., Werner, Ellen M., Grant, Althea M., Green, Nancy S., Grosse, Scott D.
Publicado no Genet Med (2014)

Improving the value of clinical research through the use of Common Data Elements (CDEs)

Por Sheehan, Jerry, Hirschfeld, Steven, Foster, Erin, Ghitza, Udi, Goetz, Kerry, Karpinski, Joanna, Lang, Lisa, Moser, Richard P., Odenkirchen, Joanne, Reeves, Dianne, Rubinstein, Yaffa, Werner, Ellen, Huerta, Michael
Publicado no Clin Trials (2016)

State-based surveillance for selected hemoglobinopathies

Por Hulihan, Mary M., Feuchtbaum, Lisa, Jordan, Lanetta, Kirby, Russell S., Snyder, Angela, Young, William, Greene, Yvonne, Telfair, Joseph, Wang, Ying, Cramer, William, Werner, Ellen M., Kenney, Kristy, Creary, Melissa, Grant, Althea M.
Publicado no Genet Med (2014)

Differences in Hemoglobin A(1c) Between Hispanics/Latinos and Non-Hispanic Whites: An Analysis of the Hispanic Community Health Study/Study of Latinos and the 2007–2012 National He...

Por Avilés-Santa, M. Larissa, Hsu, Lucy L., Arredondo, Mario, Menke, Andy, Werner, Ellen, Thyagarajan, Bharat, Heiss, Gerardo, Teng, Yanping, Schneiderman, Neil, Giachello, Aida L., Gallo, Linda C., Talavera, Gregory A., Cowie, Catherine C.
Publicado no Diabetes Care (2016)