Family Functioning Mediates Adaptation in Caregivers of Individuals with Rett Syndrome

Por Lamb, Amanda E., Biesecker, Barbara B., Umstead, Kendall L., Muratori, Michelle, Biesecker, Leslie G., Erby, Lori H.
Publicado no Patient Educ Couns (2016)

Engagement and communication among participants in the ClinSeq Genomic Sequencing Study

Por Hooker, Gillian W., Umstead, Kendall L., Lewis, Katie L., Koehly, Laura K., Biesecker, Leslie G., Biesecker, Barbara B
Publicado no Genet Med (2016)

PUGS: A novel scale to assess perceptions of uncertainties in genome sequencing

Por Biesecker, Barbara B, Woolford, Samuel W, Klein, William MP, Brothers, Kyle B, Umstead, Kendall L, Lewis, Katie L, Biesecker, Leslie G, Han, Paul KJ
Publicado no Clin Genet (2017)

A Taxonomy of Medical Uncertainties in Clinical Genome Sequencing

Por Han, Paul K. J., Umstead, Kendall L., Bernhardt, Barbara A., Green, Robert C., Joffe, Steven, Koenig, Barbara, Krantz, Ian, Waterston, Leo B., Biesecker, Leslie G., Biesecker, Barbara B.
Publicado no Genet Med (2017)