Sharing Public Health Research Data: Toward the Development of Ethical Data-Sharing Practice in Low- and Middle-Income Settings

Por Parker, Michael, Bull, Susan
Publicado no J Empir Res Hum Res Ethics (2015)

Views of Ethical Best Practices in Sharing Individual-Level Data From Medical and Public Health Research: A Systematic Scoping Review

Por Bull, Susan, Roberts, Nia, Parker, Michael
Publicado no J Empir Res Hum Res Ethics (2015)

Tailoring Information Provision and Consent Processes to Research Contexts: The Value of Rapid Assessments

Por Bull, Susan, Farsides, Bobbie, Ayele, Fasil Tekola
Publicado em 2012

Ethical issues in the export, storage and reuse of human biological samples in biomedical research: perspectives of key stakeholders in Ghana and Kenya

Por Tindana, Paulina, Molyneux, Catherine S, Bull, Susan, Parker, Michael
Publicado em 2014

Developing Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research Stakeholders

Por Denny, Spencer G., Silaigwana, Blessing, Wassenaar, Douglas, Bull, Susan, Parker, Michael
Publicado no J Empir Res Hum Res Ethics (2015)

Sweat, Skepticism, and Uncharted Territory: A Qualitative Study of Opinions on Data Sharing Among Public Health Researchers and Research Participants in Mumbai, India

Por Hate, Ketaki, Meherally, Sanna, Shah More, Neena, Jayaraman, Anuja, Bull, Susan, Parker, Michael, Osrin, David
Publicado no J Empir Res Hum Res Ethics (2015)

Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative study

Por Tekola, Fasil, Bull, Susan, Farsides, Bobbie, Newport, Melanie J, Adeyemo, Adebowale, Rotimi, Charles N, Davey, Gail
Publicado em 2009

Ethical Data Release in Genome-Wide Association Studies in Developing Countries

Por Parker, Michael, Bull, Susan J., de Vries, Jantina, Agbenyega, Tsiri, Doumbo, Ogobara K., Kwiatkowski, Dominic P.
Publicado em 2009

Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya: Views on Fair Process for Informed Consent, Access Oversight, and Community En...

Por Jao, Irene, Kombe, Francis, Mwalukore, Salim, Bull, Susan, Parker, Michael, Kamuya, Dorcas, Molyneux, Sassy, Marsh, Vicki
Publicado no J Empir Res Hum Res Ethics (2015)

Research Stakeholders’ Views on Benefits and Challenges for Public Health Research Data Sharing in Kenya: The Importance of Trust and Social Relations

Por Jao, Irene, Kombe, Francis, Mwalukore, Salim, Bull, Susan, Parker, Michael, Kamuya, Dorcas, Molyneux, Sassy, Marsh, Vicki
Publicado no PLoS One (2015)

Ethical issues in human genomics research in developing countries

Por Mercereau-Puijalon Odile, Ibrahim Muntaser, Doumbo Ogobara, Bull Susan J, de Vries Jantina, Kwiatkowski Dominic, Parker Michael
Publicado em 2011-03-01

Tailoring Consent to Context: Designing an Appropriate Consent Process for a Biomedical Study in a Low Income Setting

Por Tekola, Fasil, Bull, Susan J., Farsides, Bobbie, Newport, Melanie J., Adeyemo, Adebowale, Rotimi, Charles N., Davey, Gail
Publicado em 2009

Ethical issues in human genomics research in developing countries

Por de Vries, Jantina, Bull, Susan J, Doumbo, Ogobara, Ibrahim, Muntaser, Mercereau-Puijalon, Odile, Kwiatkowski, Dominic, Parker, Michael
Publicado em 2011

Seeking consent to genetic and genomic research in a rural Ghanaian setting: A qualitative study of the MalariaGEN experience

Por Tindana Paulina, Bull Susan, Amenga-Etego Lucas, de Vries Jantina, Aborigo Raymond, Koram Kwadwo, Kwiatkowski Dominic, Parker Michael
Publicado em 2012-07-01

Seeking consent to genetic and genomic research in a rural Ghanaian setting: A qualitative study of the MalariaGEN experience

Por Tindana, Paulina, Bull, Susan, Amenga-Etego, Lucas, de Vries, Jantina, Aborigo, Raymond, Koram, Kwadwo, Kwiatkowski, Dominic, Parker, Michael
Publicado em 2012

Understandings of genomic research in developing countries: a qualitative study of the views of MalariaGEN participants in Mali

Por Traore, Karim, Bull, Susan, Niare, Alassane, Konate, Salimata, Thera, Mahamadou A., Kwiatkowski, Dominic, Parker, Michael, Doumbo, Ogobara K.
Publicado no BMC Med Ethics (2015)

Perceived Benefits, Harms, and Views About How to Share Data Responsibly: A Qualitative Study of Experiences With and Attitudes Toward Data Sharing Among Research Staff and Communi...

Por Cheah, Phaik Yeong, Tangseefa, Decha, Somsaman, Aimatcha, Chunsuttiwat, Tri, Nosten, François, Day, Nicholas P. J., Bull, Susan, Parker, Michael
Publicado no J Empir Res Hum Res Ethics (2015)

Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam

Por Merson, Laura, Phong, Tran Viet, Nhan, Le Nguyen Thanh, Dung, Nguyen Thanh, Ngan, Ta Thi Dieu, Kinh, Nguyen Van, Parker, Michael, Bull, Susan
Publicado no J Empir Res Hum Res Ethics (2015)

Best Practices for Ethical Sharing of Individual-Level Health Research Data From Low- and Middle-Income Settings

Por Bull, Susan, Cheah, Phaik Yeong, Denny, Spencer, Jao, Irene, Marsh, Vicki, Merson, Laura, Shah More, Neena, Nhan, Le Nguyen Thanh, Osrin, David, Tangseefa, Decha, Wassenaar, Douglas, Parker, Michael
Publicado no J Empir Res Hum Res Ethics (2015)

Consensus standards for introductory e-learning courses in human participants research ethics

Por Williams, John R, Sprumont, Dominique, Hirtle, Marie, Adebamowo, Clement, Braunschweiger, Paul, Bull, Susan, Burri, Christian, Czarkowski, Marek, Te Fan, Chien, Franck, Caroline, Gefenas, Eugenjius, Geissbuhler, Antoine, Klingmann, Ingrid, Kouyaté, Bocar, Kraehenbhul, Jean-Pierre, Kruger, Mariana, Moodley, Keymanthri, Ntoumi, Francine, Nyirenda, Thomas, Pym, Alexander, Silverman, Henry, Tenorio, Sara
Publicado no J Med Ethics (2013)