Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative study

BACKGROUND: The consent process for a genetic study is challenging when the research is conducted in a group stigmatized because of beliefs that the disease is familial. Podoconiosis, also known as 'mossy foot', is an example of such a disease. It is a condition resulting in swelling of th...

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Bibliographic Details
Main Authors: Tekola, Fasil, Bull, Susan, Farsides, Bobbie, Newport, Melanie J, Adeyemo, Adebowale, Rotimi, Charles N, Davey, Gail
Format: Artigo
Language:Inglês
Published: BioMed Central 2009
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Research Article
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC2736170/
https://ncbi.nlm.nih.gov/pubmed/19698115
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1472-6939-10-13
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