Returning incidental findings in African genomics research

Por Wonkam, Ambroise, de Vries, Jantina
Publicado no Nat Genet (2020)

“I passed the test!” Evidence of diagnostic misconception in the recruitment of population controls for an H3Africa genomic study in Cape Town, South Africa

Por Masiye, Francis, Mayosi, Bongani, de Vries, Jantina
Publicado no BMC Med Ethics (2017)

Stigma in African genomics research: Gendered blame, polygamy, ancestry and disease causal beliefs impact on the risk of harm

Por de Vries, Jantina, Landouré, Guida, Wonkam, Ambroise
Publicado no Soc Sci Med (2020)

Providing a policy framework for responsible gene drive research: an analysis of the existing governance landscape and priority areas for further research

Por Thizy, Delphine, Coche, Isabelle, de Vries, Jantina
Publicado no Wellcome Open Res (2020)

"It's for a good cause, isn't it?" - Exploring views of South African TB research participants on sample storage and re-use

Por van Schalkwyk, Gerrit, de Vries, Jantina, Moodley, Keymanthri
Publicado em 2012

Deliberation to Promote Shared Sovereignty in Health Research: Four Questions to Clarify Goals, Methods, and Scope

Por de Vries, Jantina, Munung, Syntia Nchangwi, Tindana, Paulina
Publicado no Am J Bioeth (2016)

Equity in international health research collaborations in Africa: Perceptions and expectations of African researchers

Por Munung, Nchangwi Syntia, Mayosi, Bongani M., de Vries, Jantina
Publicado no PLoS One (2017)

Psychiatric Genomics: Ethical Implications for Public Health in Lower- and Middle-Income Countries

Por de Vries, Jantina, Stein, Dan J., Kamuya, Dorcas, Singh, Ilina
Publicado no Am J Bioeth (2017)

Data Sharing in Genomics – Re-shaping Scientific Practice

Por Kaye, Jane, Heeney, Catherine, Hawkins, Naomi, de Vries, Jantina, Boddington, Paula
Publicado em 2009

Planning for translational research in genomics

Por Hawkins, Naomi, de Vries, Jantina, Boddington, Paula, Kaye, Jane, Heeney, Catherine
Publicado em 2009

Ethical implications of the use of whole genome methods in medical research

Por Kaye, Jane, Boddington, Paula, de Vries, Jantina, Hawkins, Naomi, Melham, Karen
Publicado em 2010

Do solidarity and reciprocity obligations compel African researchers to feedback individual genetic results in genomics research?

Por Ralefala, Dimpho, Kasule, Mary, Wonkam, Ambroise, Matshaba, Mogomotsi, de Vries, Jantina
Publicado no BMC Med Ethics (2020)

Informed consent in genomic research and biobanking: taking feedback of findings seriously

Por Tindana, Paulina, Depuur, Cornelius, de Vries, Jantina, Seeley, Janet, Parker, Michael
Publicado no Glob Bioeth (2020)

Ethical issues in genomic research on the African continent: experiences and challenges to ethics review committees

Por Ramsay, Michèle, de Vries, Jantina, Soodyall, Himla, Norris, Shane A, Sankoh, Osman
Publicado no Hum Genomics (2014)

Ethical considerations in forensic genetics research on tissue samples collected post-mortem in Cape Town, South Africa

Por Heathfield, Laura J., Maistry, Sairita, Martin, Lorna J., Ramesar, Raj, de Vries, Jantina
Publicado no BMC Med Ethics (2017)

Lived Experiences of Fragile X Syndrome Caregivers: A Scoping Review of Qualitative Studies

Por Kamga, Karen Kengne, De Vries, Jantina, Nguefack, Seraphin, Munung, Syntia Nchangwi, Wonkam, Ambroise
Publicado no Front Neurol (2020)

What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda

Por Rutakumwa, Rwamahe, de Vries, Jantina, Parker, Michael, Tindana, Paulina, Mweemba, Oliver, Seeley, Janet
Publicado no Glob Bioeth (2019)

Investigating the potential for ethnic group harm in collaborative genomics research in Africa: Is ethnic stigmatisation likely?

Por de Vries, Jantina, Jallow, Muminatou, Williams, Thomas N., Kwiatkowski, Dominic, Parker, Michael, Fitzpatrick, Raymond
Publicado em 2012

Mapping experiences and perspectives of equity in international health collaborations: a scoping review

Por Faure, Marlyn C., Munung, Nchangwi S., Ntusi, Ntobeko A. B., Pratt, Bridget, de Vries, Jantina
Publicado no Int J Equity Health (2021)

Knowing who to trust: exploring the role of ‘ethical metadata’ in mediating risk of harm in collaborative genomics research in Africa

Por de Vries, Jantina, Williams, Thomas N, Bojang, Kalifa, Kwiatkowski, Dominic P, Fitzpatrick, Raymond, Parker, Michael
Publicado em 2014