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Measuring health-related quality of life in patients with rare disease

BACKGROUND: There has been a growing emphasis on health-related quality of life (HRQoL) as an important outcome in rare disease drug development, although its assessment may be useful outside the drug development context, including in clinical applications or natural history studies. Central to asse...

תיאור מלא

שמור ב:
מידע ביבליוגרפי
הוצא לאור ב:J Patient Rep Outcomes
Main Authors: Lenderking, William R., Anatchkova, Milena, Pokrzywinski, Robin, Skalicky, Anne, Martin, Mona L., Gelhorn, Heather
פורמט: Artigo
שפה:Inglês
יצא לאור: Springer International Publishing 2021
נושאים:
גישה מקוונת:https://ncbi.nlm.nih.gov/pmc/articles/PMC8292508/
https://ncbi.nlm.nih.gov/pubmed/34283357
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s41687-021-00336-8
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