Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands

BACKGROUND: We aimed to identify healthcare needs, expectations, utilization, and the experienced treatment effects in a population of Dutch patients with hereditary spastic paraplegia (HSP). METHODS: We distributed an online questionnaire among 194 adult persons with HSP in the Netherlands, of whic...

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書誌詳細
出版年:Orphanet J Rare Dis
主要な著者: Kerstens, Hans C. J. W., Van Lith, Bas J. H., Nijkrake, Maarten J., De Swart, Bert J. M., Van den Bemd, Laura A. C., Smeets, Rob J. E. M., Klemens, Fheodoroff, Van de Warrenburg, Bart P. C., Van der Wees, Philip J., Geurts, Alexander C. H.
フォーマット: Artigo
言語:Inglês
出版事項: BioMed Central 2021
主題:
Research
オンライン･アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC8223283/
https://ncbi.nlm.nih.gov/pubmed/34167574
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-021-01915-0
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