Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands

BACKGROUND: We aimed to identify healthcare needs, expectations, utilization, and the experienced treatment effects in a population of Dutch patients with hereditary spastic paraplegia (HSP). METHODS: We distributed an online questionnaire among 194 adult persons with HSP in the Netherlands, of whic...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Kerstens, Hans C. J. W., Van Lith, Bas J. H., Nijkrake, Maarten J., De Swart, Bert J. M., Van den Bemd, Laura A. C., Smeets, Rob J. E. M., Klemens, Fheodoroff, Van de Warrenburg, Bart P. C., Van der Wees, Philip J., Geurts, Alexander C. H.
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2021
Assuntos:
Research
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC8223283/
https://ncbi.nlm.nih.gov/pubmed/34167574
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-021-01915-0
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