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Patient-reported Outcomes in Sickle Cell Disease and Association with Clinical and Psychosocial Factors: Report from the Sickle Cell Disease Implementation Consortium

Understanding patient experiences, quality of life, and treatment needs in individuals with sickle cell disease (SCD) is essential in promoting health and well-being. We used measures from the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), Patient Reported Outcomes Measu...

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書目詳細資料
發表在:Am J Hematol
Main Authors: Knisely, Mitchell R., Pugh, Norma, Kroner, Barbara, Masese, Rita, Gordeuk, Victor, King, Allison A., Smith, Sharon M., Gurney, James G., Adams, Robert, Wun, Ted, Snyder, Angela, Glassberg, Jeffrey, Shah, Nirmish, Treadwell, Marsha
格式: Artigo
語言:Inglês
出版: 2020
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在線閱讀:https://ncbi.nlm.nih.gov/pmc/articles/PMC8141351/
https://ncbi.nlm.nih.gov/pubmed/32449965
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajh.25880
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