Patient-reported Outcomes in Sickle Cell Disease and Association with Clinical and Psychosocial Factors: Report from the Sickle Cell Disease Implementation Consortium

Understanding patient experiences, quality of life, and treatment needs in individuals with sickle cell disease (SCD) is essential in promoting health and well-being. We used measures from the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), Patient Reported Outcomes Measu...

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Bibliografiske detaljer
Udgivet i:Am J Hematol
Main Authors: Knisely, Mitchell R., Pugh, Norma, Kroner, Barbara, Masese, Rita, Gordeuk, Victor, King, Allison A., Smith, Sharon M., Gurney, James G., Adams, Robert, Wun, Ted, Snyder, Angela, Glassberg, Jeffrey, Shah, Nirmish, Treadwell, Marsha
Format: Artigo
Sprog:Inglês
Udgivet: 2020
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Article
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC8141351/
https://ncbi.nlm.nih.gov/pubmed/32449965
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajh.25880
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