Patient-reported Outcomes in Sickle Cell Disease and Association with Clinical and Psychosocial Factors: Report from the Sickle Cell Disease Implementation Consortium

Understanding patient experiences, quality of life, and treatment needs in individuals with sickle cell disease (SCD) is essential in promoting health and well-being. We used measures from the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), Patient Reported Outcomes Measu...

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Publicado en:Am J Hematol
Main Authors: Knisely, Mitchell R., Pugh, Norma, Kroner, Barbara, Masese, Rita, Gordeuk, Victor, King, Allison A., Smith, Sharon M., Gurney, James G., Adams, Robert, Wun, Ted, Snyder, Angela, Glassberg, Jeffrey, Shah, Nirmish, Treadwell, Marsha
Formato: Artigo
Idioma:Inglês
Publicado: 2020
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Article
Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC8141351/
https://ncbi.nlm.nih.gov/pubmed/32449965
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajh.25880
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