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Shaping national plans and strategies for rare diseases in Europe: past, present, and future
Addressing the many challenges posed by rare diseases to patients, families, and society at large demands a specific national (as well as transnational) focus. Historically, the practice of elaborating and adopting national plans and strategies for rare diseases, following a request from the Europea...
Uloženo v:
| Vydáno v: | J Community Genet |
|---|---|
| Hlavní autoři: | , , , |
| Médium: | Artigo |
| Jazyk: | Inglês |
| Vydáno: |
Springer Berlin Heidelberg
2021
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| Témata: | |
| On-line přístup: | https://ncbi.nlm.nih.gov/pmc/articles/PMC8097119/ https://ncbi.nlm.nih.gov/pubmed/33950416 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-021-00525-4 |
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