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Shaping national plans and strategies for rare diseases in Europe: past, present, and future
Addressing the many challenges posed by rare diseases to patients, families, and society at large demands a specific national (as well as transnational) focus. Historically, the practice of elaborating and adopting national plans and strategies for rare diseases, following a request from the Europea...
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| 出版年: | J Community Genet |
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| 主要な著者: | , , , |
| フォーマット: | Artigo |
| 言語: | Inglês |
| 出版事項: |
Springer Berlin Heidelberg
2021
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| 主題: | |
| オンライン･アクセス: | https://ncbi.nlm.nih.gov/pmc/articles/PMC8097119/ https://ncbi.nlm.nih.gov/pubmed/33950416 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-021-00525-4 |
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