European Reference Networks: challenges and opportunities

European Reference Networks (ERNs) were founded on the principle that many rare disease (RD) issues are pan-European and any single Member State cannot solve them alone. In 2021, ERNs are already in the deployment stage; however, their day-to-day functioning and realization of their potential are st...

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Bibliografiske detaljer
Udgivet i:J Community Genet
Main Authors: Tumiene, Birute, Graessner, Holm, Mathijssen, Irene MJ, Pereira, Alberto M, Schaefer, Franz, Scarpa, Maurizio, Blay, Jean-Yves, Dollfus, Helene, Hoogerbrugge, Nicoline
Format: Artigo
Sprog:Inglês
Udgivet: Springer Berlin Heidelberg 2021
Fag:
Original Arrticle
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7968406/
https://ncbi.nlm.nih.gov/pubmed/33733400
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-021-00521-8
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