How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study

BACKGROUND: Care coordination is considered important for patients with rare conditions, yet research addressing the impact of care coordination is limited. This study aimed to explore how care coordination (or lack of) impacts on patients and carers. Semi-structured interviews were conducted with 1...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Simpson, Amy, Bloom, Lara, Fulop, Naomi J., Hudson, Emma, Leeson-Beevers, Kerry, Morris, Stephen, Ramsay, Angus I. G., Sutcliffe, Alastair G., Walton, Holly, Hunter, Amy
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2021
Assuntos:
Research
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7874609/
https://ncbi.nlm.nih.gov/pubmed/33568181
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01664-6
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